Thursday, April 16, 2009

Upper GI

Later that night, Dr. Fuhlmer, said that they were going to schedule an upper GI for Hayden the next morning, and that they were still going to try to get some blood tonight. I gave him the orders I had from IA City to redraw his blood to make sure the antibiotic overdose he had in the OR wasn't causing any problems. I also reminded him that Hayden was a very hard stick and that they were going to need a transport nurse or the NICU to find a vein. We waited and waited for a transport nurse to come. About 9pm, a phelbotomist came in and after a couple of tries gave up. It continually blows my mind that some people can get his veins in one poke and other never can. At about 11pm, we were surprised to see Laura and Alicia from the NICU walk in. They took care of the boys during our last couple of months in the NICU. It was great to see them. Sure enough, one poke and a few seconds later, a vile full of Hayden's blood was off to the lab. Bless them! They saw that Hayden still had a NICU pacifier. I told them that he won't use another kind. Thankfully, we have a few left. Wendy really stocked us up when he was discharged. Bless her, too! A few minutes later, Hayden's nurse returned to the room with a bag of pacifiers from the NICU. How sweet! Hayden's pacifiers are crucial to getting him through hospital stays, surgery, tests, any time he needs comforting, and especially when his reflux is especially bad. We have been blessed with so many acts of kindness this hospital stay. We truly appreciate each and every one of you. Hayden was completely worn out and slept through the night. After being up for 25 hours, I finally pulled out the chair and went to sleep.



Hayden's food was cut off early in the morning, so his stomach would be empty for the upper GI. Hayden got the okay to end the EEG late morning,so we were taken to radiology around 11am, I think. Hayden laid on the table and the tech ran barium through his feeding tube. I'm not certain about what I saw, but I do not believe that I saw any reflux. After his test, we went back to his room so that I could get some food in this boy. They only brought the Enteral Pediasure to his room. This Pediasure can only be tube fed. We buy regular Pediasure at home that can be feed orally or by a tube. It looks like Hayden lucked out this hospital stay...I didn't have to keep at him to take something, anything from a bottle. Later that afternoon, it was confirmed that all of Hayden's tests (he had a CT scan, too) were fine. It's a little frustrating when it appears that his reflux is severe and it never shows itself on tests. That keeps us second guessing and wondering if there is some secondary condition causing the vomiting to be worse. That would be the reason Hayden has an appt with an ENT doctor coming up. We are praying he finds some simple easy fix for Hayden's increased vomiting.

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