EEG Results

Yesterday morning Hayden had another EEG. I've been very nervous about this for weeks. We had to check into the hospital at 7:30am, so we had to leave home no later than 7pm. In hopes to avoid an early morning vomit, we didn't put Hayden on his pump overnight. I stayed up later and fed him half of his feed before bed and got up at 4am to give him the rest of his feed. Hayden wanted to look spiffy for his EEG ladies, so I picked out a red golf shirt to wear with his navy, red and white plaid short. He has always looked so handsome in red. Red was my grandma's color, so I like to believe this was her way of telling me that she is looking over Hayden. Of course, my efforts failed. Hayden vomited the second I put him in his car seat. Luckily, I was able to keep most of it off of him. Just a couple of spots ended up on his shirt. Nothing I couldn't wait to change until we got to his EEG room. This was one of those episodes where Hayden is crying really hard and arching his back. Since he began vomiting as soon as I sat him in his car seat, he wasn't strapped in. I'm sure it was quite a sight to see me trying to keep vomit from going all over Hayden, his car seat, and the car with a small blanket from the floor of the minivan (the blankets I brought for this were zipped in his diaper bag in the front seat.). A couple of minutes later, we were on our way to the hospital with classical music playing on the radio. Hayden absolutely loves to listen to classical music. Yep, he has mommy trained already.

Hayden's ego got an early head start when the woman who was checking him in said that he was absolutely beautiful and of course commented on how long and thick his eyelashes are. After that, we headed to the waiting room to wait for one of Hayden's EEG ladies. As we waited, Hayden was in a fabulous mood (he always is after he vomits) and was jabbering away with me and playing pat-a-cake. Next thing we knew Kristi came to get us. It was great to see her and catch up...it's been four months! While Hayden was getting hooked up, one of his other favorite ladies, Amanda, came in to say a quick hi. There were several spikes on the EEG, but I couldn't tell for sure if they were real ones or not. My head was telling me that some of them probably were. That the EEG was still good, but not as good as it was. My heart was praying that they were not real spikes. All that there was to do now was to wait for Dr. Palat's call.

That call came just before 4pm today, just after Hayden's speech therapist arrived. As expected, Hayden's EEG was not as good as the last one, but was still better than it was prior to February 2009 when he was diagnosed with infantile spasms. She does not want to make any changes and wants a follow up office visit in 3 months. Now, all we can do is to wait and pray that his seizures stay well controlled. We know that the odds are against that and every day I am terrified that this will be the day we have to battle seizures again. Of all of the things that Hayden is challenged with, the seizures leave us helpless. There's nothing we can do to help him other than to make him safe and pray we don't have to use the Diastat (rescue seizure med). At least with the cerebral palsy and the blindness we can actively do things with him to help him progress.